Welcome to ASID's Podcasts!
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#ASID2018 StoryBooth - Bonus Episode 2 - Stories of giving back
Our second bonus episode features more stories from self-advocates who attended the #ASID2018 Conference. This podcast links their real life experiences to research from ASID journals.
You will hear about how many self-advocates want to give back. Sarah talks about advocating for herself to get to the conference while Christie and Ben talk about their advocacy work as part of the Mainstream and Me project.
Your hosts Sophia and Hilary discuss the research on self-advocacy and peer support. We would love you to tell us about any research we missed using the hashtag #ASIDpod!
And don’t forget to listen the first bonus episode from the StoryBooth.
This episode was produced by Buffy Gorilla, Ben Pawson, Sophia Tipping and Hilary Johnson. Special thanks to the ASID board, the communications committee and all the self-advocates who spoke to us. Stay tuned for the final StoryBooth bonus episode in two weeks!
Season 2 Episode 3
Bonus 1 of 3
In the first of a series of three bonus episodes, we hear stories from self-advocates who attended the #ASID2018 Conference StoryBooth and about how recent research from our journals that relates to people’s real life experiences.
The first episode is about what self-advocates do with their time. We hear Alison talk about the Brisbane music scene, Alan talk about his job on the Parks Crew, and from Ian the cook and the Vice President Bernard.
Tell us about any research we missed using the hashtag #ASIDpod!
Season 2 Episode 3
Did you miss out on the #ASID2018 Conference “Let’s Shake It Up - Human Rights for Everyone”
at the Gold Coast?
Never fear! Episode three takes you to the Gold Coast in Queensland for an access all areas taster of the #ASID 2018 conference.
In this episode, we hear from all the keynotes including Queensland self-advocates Paul O’Dae, Donna Best and Alex Baker; international keynote speakers Professor Andrew Jahoda, Professor Chris Hatton, Associate Professor Ann Fudge Schormans and Doctor Brigit Mirfin-Veitch; and Australian academics Professor Monica Cuskelly and Dr Kathy Ellem.
We also did lots of running around getting vox pops on highlights from the wider program from delegates, including self-advocates.
We also have an exciting bonus episode due in early 2019 where you will hear the outcome of the popular conference Storytelling Booth. There will be heaps of stories from self-advocates who attended. Don’t miss it!
This episode was produced by Ben Pawson, Buffy Gorrilla, Sophia Tipping & Associate Professor Hilary Johnson with thanks to the Living with Disability Research Centre.
Thank you to the all key notes who kindly gave up their time for the podcast, thank you to all the delegates, self-advocates and exhibitors who also shared their thoughts - especially ASID president Laura Hogan, Alison Maclean, Jim Simpson, Jack Kelly, Sonya Hume, Namira Williams, Rae West, Susan Holrian, Brent Hayward, Susan Harbottle, Sally Robinson along with many other vox poppers who we didn’t have time to include! Also, thank you to Dean from takebetterphotos.com.au for the images used in on social media and header photo.
Season 2 Bonus Episode
In this bonus episode on voting rights, self-advocates talk about barriers to accessing information needed to make decisions about who to vote for - like Susan from Reinforce & Positive Powerful Parents Self-Advocacy Group who said that “Them not speaking in so much jargon, and them doing what they promised” would help. This echoed what came out of a recent research project by the Living with Disability Research Centre. That we talked about in Episode two.
You will hear directly from 22 self-advocates from seven groups and organisations including VALID, NSWCID, Reinforce, New Horizons, and New Wave (again, with thanks to SARU for linking us all up). They tell us why politicians should listen and what political issues are important to them!
We also hear from five politicians running for re-election in the 2018 November Victorian State Election: Fiona Patten State MP and Leader of the Reason Party; Danielle Green, State Labor member for Yan Yean; David Southwick, Liberal member for Caulfield; Suzanna Sheed, the Independent State Member for Shepparton District; and Gabrielle Williams, State Member for Dandenong, Parliamentary Secretary for Health and Parliamentary Secretary for Carers and Volunteers.
Plus more from Sophia Tipping from the Living with Disability Research Centre and find out what that elusive fifth recommendation of the Strategies to Support People with Intellectual Disability to vote project was.
Season 2 Episode 2
Do people with intellectual disability vote? What stops them from exercising their democratic right? What supports people with intellectual disability to participate in elections?
In Episode two Sophia Tipping from the Living with Disability Research Centre tells us about a collaborative, action research project on strategies to support people with intellectual disability to vote. Tweet the researchers at @sophia_tee and @LIDSLaTrobe !
Debra Taylor and Simone Stevens from the Victorian Electoral Commission (VEC) tell us about some strategies being implemented for an Australian election in November 2018.
Season 2 Episode 1
"Supported decision making"
In Episode one, we are hearing from Dr. Jo Watson who will tell us about her research in to Supported Decision Making for People who communicate n unconventional ways or have severe or profound intellectual disabilities. We will also hear from Gloria and Michael who live Supported Decision Making everyday.
Dr. Jo is a lecturer in Deakin University's Disability And Inclusion. You can find out more about Dr. Jo research in her recent IDA Magazine article, her PhD thesis, her recent paper on supporter attitudes and in her Ted Talk. You can also tweet her
Produced by Sophia Tipping, Buffy Gorrilla & Hilary Johnson with thanks to the Living with Disability Research Centre.
Reviews from this podcast:
My mother thought it was great. She loved hearing Jo’s narrative and was inspired by it.
My husband was very impressed with the quality of the production when he listened to it. He thought it was on a par with “The Naked Scientist”(one of his favourite podcasts).
I’ve just listened to the Supported Decision making podcast- well done- it was great- really interesting and very professionally dome – music and everything! I loved the format- I really enjoyed it and am super impressed! Gold stars all round
Season 1 Episode 4
"The Lake House: A Group Home for People with Intellectual Disability"
In Episode Four we hear Lisa Hamilton speak about her PhD research. She explored the concept of "home" for people with intellectual disabilities living in group homes.
Lisa Hamilton is a PhD Candidate at Queensland University of Technology.
Season 1 Episode 3
"How to promote good health & maximise the healthcare of people with an Intellectual disability – Ideas, tips and strategies"
In Episode Three of the ASID podcast series we bring you the presentation of "How to promote good health & maximise the healthcare of people with an Intellectual disability – Ideas, tips and strategies". Dr Jane Tracey, Director of the Centre for Developmental Disability Health, Monash Health and Prof Nick Lennox, Director QLD Centre for Intellectual & Developmental Disability were our presenters.
Season 1 Episode 2
"Political citizenship of people with intellectual disability"
In Episode Two of the ASID podcast series we bring you the highlights of the "Putting rights into practice: Political citizenship and people with intellectual disability" seminar. The event was held in November 2016 and was a partnership between ASID, Inclusion Melbourne and the Living with Disability Research Centre at LaTrobe University.
Speakers Sophia Tipping (Living with Disability Research Centre), Sharon Kensell (Advocacy for Inclusion), Sue Lang (Victorian Electoral Commission), Jane Tracy (a parent, Centre for Developmental Disability Health Victoria at Monash University) along with Daniel Leighton and Nathan Despott (both of Inclusion Melbourne) provide summaries of their work and experience around the political citizenship.
The presentations from each of the speakers are listed below:
Season 1 Episode 1
"I can't always read and it isn't always easy"
What makes written information easier for people with intellectual disability to understand?
ASID presents a research to practice seminar looking at strategies that help people understand written information. Susan Buell will be sharing work from her recent Ph.D study in the UK.
Seminar presenter: Susan Buell
Susan works in the School of Health Sciences in The University of East Anglia in Norwich, UK. Her interests in research are focused on developing the participation of adults with intellectual disabilities and their families in society. Her doctorate research investigated the value of ‘easy read’ literature for adults with intellectual disabilities in constructing meaningful understanding of health issues. She has worked as a Speech and Language Therapist in the National Health Service and within inclusive education in Scotland, and subsequently spent 7 years working with children and adults with disabilities in Bolivia, in Latin America.