Conference Theme was “The Journey to a Good Life – Taking Control”

The 53rd ASID conference was held from 6 – 8 November at the Hilton Adelaide.

This year’s theme is The Journey to a Good Life – Taking Control, with a focus not just on funding models and systems but seeking a deeper understanding of the complexities and challenges of the journey to a good life.

Aim of the Conference

The conference aim was to present an inclusive and exciting program with many opportunities for discussion and debate. ASID’s focus is research to practice – the dialogue between researchers, practitioners, service providers, governments, families and people with intellectual disability which has the goal of finding better ways to support inclusion for individuals and to change systems.

Local Organising Committee

Denice Wharldall (Co-convenor)
Ian Pearce (Co-convenor)
Ian Cummins
Ruth Firstbrook
Sue Goodall
Susan Michael
Richard O’Loughlin
Karen Rogers
Janet Videon

Program Committee

Professor Christine Bigby (Chair)
Professor Leanne Dowse
Gordon Duff
Dr Hilary Johnson
Dr Brigit Mirfin-Veitch
Denice Wharldall

Keynote Speakers

• Dr Nick Gore
• Jim Simpson
• Shu Hua Chan
• Dr Stacy Clifford Simplican
• Dr Jennifer Clegg
• Scott Avery
• Ian Cummins
• Tiffany Littler
• Rebeka Touzea
• Gavin Burner
• Chris Bergin
• Sarah Byrne
• Elizabeth Crawford

HANDBOOK (including program and abstracts) (PDF)

ASID 2019 Conference – Wednesday

Presentation PDFs

Where available, PDFs of presentation slides are linked below.  Abstracts can be viewed through the Handbook PDF.

Keynotes

• Systemic advocacy and leadership by people with intellectual disability – Shu Hua Chan and Jim Simpson
• What stereotypes do people have of YOU? – Dr Dean Holland – Take Better Photos

Concurrent Session #1

• Embracing the future: an evaluation of sexuality workshops for parents and carers of children and young people with intellectual disability and autism spectrum disorders – Erin Donnelly
• What makes community activities accessible? The views of adults with intellectual disability – Dr Allyson Thomson
• Having a say: Down Syndrome Advisory Network (DSAN) – Dr Ellen Skladzien
• Improving school to work transition for young people with intellectual disability – Amy Scott & Dr William Crisp
• Twitter School! – Aine Healey
• Adult siblings of people with disability: exploring the complex system of relationships that contribute to positive life span outcomes – Wendy Simpson
• Finding ways to support local councils as agents for inclusion – what the “My Home My Community” project has discovered so far – Dr Phillippa Carnemolla, Jack Kelly, Catherine Donnelley & Aine Healey
• Writing the script. The overt and hidden contradictions of supporters’ work in independent self-advocacy groups – Dr Sian Anderson
• An evaluation of Community Bridging Service Inc.’s school2work Supports – Adele Demasi
• Friendships & relationships for people with intellectual disability – The Inclusive Research Network
• The experiences of ageing parent carers and the reasons behind their decision to continue to care for adult children with intellectual disability at home – Wendy Simpson
• Enabling hospitals to be more inclusive and responsive to people with intellectual disabilities – Professor Christine Bigby
• Mutual recognition in paid support relationships – Professor Karen Fisher & Professor Sally Robinson
• The Micro Enterprise Project: building meaningful employment opportunities for people with disability – Jayne Barrett
• Models for forming and supporting circles of support for people with intellectual disability – Dr Tal Araten-Bergman

Concurrent Session #2

• Workshop: YOU too can be an advocate! – Jim Simpson & Shu Hua Chan
• Workshop: Oral health champions at genU – supporting the journey to a good life and taking control – Margery Pithouse & Bonnie Morrison
• Increasing rigour in inclusive disability research methods: a systematic technique for accessible data analysis – Professor Sally Robinson & Professor Karen Fisher
• Workshop: More than just a poster boy – making sure people with intellectual disability have choice and control of how they are represented in communications – Ben Alexander & Rachel Spencer
• Workshop: Pathological demand avoidance: hype or hard graft? – Dr Jenny Curran, Michelle Miller & Kerry Rye
• Using a novel approach to participatory network mapping to understand value creation in the lives of families with a primary school-aged child with intellectual disability – Jane Adams

Concurrent Session #3

• Workshop: Feminist theories of freedom and intellectual disability: new ways forward for the concept of encounter – Dr Stacy Clifford Simplican
• Recognising and responding to pain in adults with severe intellectual disability: the effectiveness of an intervention targeting support workers – Dr Stella Koritsas
• What good life?- looking for belonging on the fringes – Benjamin Garcia-Lee
• Where to next for adults with intellectual disability who have completed an inclusive university program – Charlotte Gobec
• Mental health in children with a neurogenetic syndrome associated with intellectual disability – A/Professor Jenny Downs
• People with intellectual disability and type 1 diabetes: toward strategies for supported independence – Dr Nathan Wilson
• Evidenced based trial for complex psychosocial and forensic disability service delivery models in an NDIS framework – journey to a good life – Melinda Kubisa & Susan Goodall
• Developing social skills with adults – Emily Churchill
• FaceMatch.org.au: using computer vision to improve genomic diagnosis for people with a syndromic form of intellectual disability – Dr Tracy Dudding-Byth
• Prevalence and incidence of physical health disorders in people with intellectual disability – a systematic review – Peiwen Liao
• Building good lives, together – the development and implementation of a Model of Care in a NZ forensic intellectual disability context – Sandra Malcolm & Anne Mathieson
• A process evaluation of an innovative inclusive performing arts project “Experience Collider” for teens with multiple support needs, within a quality of life framework – Nada Murphy
• Development, validation and use of the Quality of Life Inventory-Disability (QI-Disability) – A/Professor Jenny Downs

ASID 2019 Conference – Thursday

Presentation PDFs

Where available, PDFs of presentation slides are linked below.  Abstracts can be viewed through the Handbook PDF.

Keynotes

• We’re in this together: partnership working and Positive Behavioural Support – Dr Nick Gore
• Helping damaged people manage their chaotic emotions – Dr Jennifer Clegg

Concurrent Session #4

• Workshop: The long and winding road (big step) – Donna Best, Paul O’Dea, Belinda Drew, Morrie O’Connor & Michelle Moss
• Workshop: Taking control through digital transformation – effective systems – Natalie Berry & Declan Kelly
• Making it real – student education in rural allied health disability services – Julie Cullenward
• What do disability support organisations believe about Positive Behaviour Support (PBS)? Using policy belief systems to identify emerging alliances in the NDIS – Brent Hayward
• Local Inclusive Fitness for Everyone (LIFE): results from a novel pilot project – Dr Carole Broxham & Dr Eli Ristevski
• CDS outreach: reflections on establishing therapy facilitator services under the NDIS in western NSW – Sarah Wagstaff
• The accessibility and usefulness of Positive Behaviour Support plans for non-specialised support people – Chloe Jarvis
• Inclusive access to South Australian sporting clubs for individuals with intellectual and physical disabilities – Claire Robertson

Concurrent Session #5

• Restrictive practices – illuminating communities – Susan Connell
• People with intellectual disabilities as researchers: establishing an inclusive research team – Felicity Crowther
• Telepractice: a real choice for quality therapy services in rural areas – Dr Kim Bulkeley
• Article 12 and the NSW guardianship framework: a case study highlighting barriers for people with intellectual disability regarding legal capacity and autonomy of decision-making – Jenna Macnab
• What is good service quality for people with intellectual disability? Frontline day service staff’s perspectives on what it is and how it should be measured – Jade McEwen
• Understanding the impact of the roadmap for achieving dignity without restraint for people with disabilities – Dr Raelene West
• Inclusive research and diverse teams – who takes control and when?! – Dr Phillippa Carnemolla, Jack Kelly, Catherine Donnelley & Aine Healy
• Barriers and impediments to providing end-of-life care in rural Australia – A/Professor Stuart Wark
• Strategies for supporting people with intellectual disability to have choice and control over their lives? – Dr William Crisp
• Building safe and respectful cultures in disability services: results of a pilot project – Professor Sally Robinson & Marianna Codognotto
• Background evidence for the statement of ASID’s position on intellectual disability and complex support needs – Professor Leanne Dowse
• Our recipe for inclusive research – Rachel High, Hannah Beinke, Mary Whitford, Genelle Markham & Corey Hooper
• Living a good life for Aboriginal people with intellectual/ developmental disability from central Australia – A/Professor Angela Dew
• Developing an evidence-based practice framework to guide support for decision making – Professor Christine Bigby
• Sexual abuse of people with an intellectual disability – a perpetrator case study – Gail Ritchie

Concurrent Session #6

• Workshop: Emotional wellbeing and PBS for caregivers and people with disabilities who display behaviours that challenge – Dr Nick Gore
• Workshop: Making services safer and more respectful – Peta Ferguson, Professor Sally Robinson & Marianna Codognotto
• Panel Discussion: NDIS – What could possibly go wrong? – Panel Members: Morrie O’Connor, Jim Simpson & Delphine Stagg
• Workshop: My life. My rights. How Australia is doing at protecting our human rights and what the UN have to say – Rachel Spencer, Judy Huett & Sonia Hume
• Round Table: Inclusion of people with intellectual disability at university in Australia – Dr Fiona Rillotta & Professor Patricia O’Brien

Concurrent Session #7

• Workshop: What inclusion means to me – Sarah Byrne, Rebeka Touzeau, Chris Bergin & Ben Alexander
• Forum: Royal Commission on Abuse,Violence Neglect, and Exploitation of People with Disabilities
• Workshop: The Adult Attachment Picture Projective System: what it tells us about bereavement and why that matters – Dr Jennifer Clegg
• Inclusive practice for decision making support – Justine O’Neill & Jack Kelly
• Living a full and meaningful life with a physical & intellectual disability – Dayna Atkinson, Valeska Catalan & Sarah Black
• Evaluation of decision-making support training for disability support workers – Dr Stella Koritsas
• Experiences of National Disability Insurance Scheme planning from the perspective of adults with intellectual disability – Professor Angus Buchanan
• The international perspective on Easy English and Easy Read: the journey forward – Cathy Basterfield
• Service provider perspectives on supporting people with intellectual and developmental disability from Iraqi and Syrian refugee backgrounds – A/Professor Angela Dew

ASID 2019 Conference – Friday

Presentation PDFs

Where available, PDFs of presentation slides are linked below.  Abstracts can be viewed through the Handbook PDF.

Keynotes

• Indigenous perspectives on disability and inclusion, and implications of these for supporting people with intellectual disabilities – Scott Avery
  
• Self-advocacy, peer networks and accessible information provision: how they have shaped our lives – Ian Cummins, Tiffany Littler, Rebeka Touzea, Gavin Burner, Chris Bergin, Sarah Byrne & Elizabeth Crawford
  

Concurrent Session #8

• Workshop: Inclusive research methods and practices involving people with intellectual disability – Scott Avery & A/Professor Angela Dew
• Workshop: Speaking up for yourself – the first steps to being a self-advocate – Our Voice SA members: Elizabeth Crawford & Gavin Burner with Karen Rogers & Alison Vivian
• Belonging to the Disability Services Advisory Council – Brad Mitchell & Emily Reaper
• Caregivers’ views of the risks and benefits of Internet use by people with intellectual disability – Sarah Glencross
• From criminalisation to individual choice: policy responses to changing constructions of intellectual disability in Western Australia – Wendy Simpson
• An artist’s interpretation of the National Standards for Disability Services – The Inclusive Research Network
• The use of virtual reality for capacity building through sensory experiences – Gerald Farrugia
• Adventures in becoming a ‘legal’ adult with severe intellectual disabilities: personal and research perspectives – Michelle King
• Taking control through writing and making art – Lisa Scott & Chloe Watfern
• There and back again – Our South Australian Journey.  The use of skilled communication partners in the criminal justice space – Jennifer Jacobs & Cheryll Rosales

Concurrent Session #9

• Workshop: Wrap up session: What can we do with all the research! – Aine Healey, Sonia Hume & Gavin Burner
• Round Table: The right to effective treatment for individuals with complex needs – Jennifer Colechin & Chelsea Troutman
• Building Family Leadership – Culture and Process – a Provider’s View – Prue Gorman
• Evaluating Self-directed Support – Outcomes of a Family Leadership Model – A/Professor Caroline Ellison
• My experience of self-directing my own support – Michael Mooney